Innovative ICT & Ageing-well solutions for older care and disease management have great potential for improving quality of life and sustainability of care for the ageing population. There are important initiatives on going at national, regional and local levels, but they are largely operating in isolation.
The primaryaimof the study was to identify existingsolutions for older care and disease management in Europe. The second objective is to examine and define business models related to ICT and Ageing well. But designing business models is a complex undertaking because different requirements (e.g. technical, user, organizational and financial requirements) need to be accommodated and balanced. Design choices in one domain (e.g. technical domain) may affect those of the other domains (e.g. user domain). This interrelatedness of design choices complicates the design of viable business models.
The business model describes how the entity will create value. It can involve the business’ purpose, offerings, strategies, infrastructure, organizational structures, trading practices, and operational processes and policies. So, too, appropriate technology can vary by business model, experts say. Technology can determine the business model as well.
The project LILY – Advanced Support for Independent Living; Human LifeCycle Approach in Senior Housing is a cooperative project with the objective to create a sustainable senior-centered system for a comprehensive innovative management of independence and participation in ‘Self-Serve Society’ via advanced ICT for people aged around 55 and above.
LILY focuses on the improvement of the quality of life, autonomy, and participation in social life through an adaptable home environment for managing activities of daily living (ADL). The target groups of the system are
- Older persons living in their private home who can use the system to manage their ADL
- Care givers, social workers and family members who can use the system to stay in contact with their clients/relatives, jointly arrange activities and receive feedback
- Public and private service providers who can announce activities and/or offer various kinds of services to partake in those activities
This deliverable at hand tries to give a brief overview on the state-of-the-art, architectures and standards for AAL solutions.
In a project such as LILY whose success depends on adequate and effective user involvement in order to achieve its goals, there is a variety of ethical issues that need to be taken into account. Whenever users are engaged in a research project, it is of pivotal importance to consider any ethical aspects with regard to recruitment and participation as well as documenting, recording, analyzing, processing, accessing and storing the data collected. To conduct ethically sound research means to show respect for one’s research subjects, for their dignity and autonomy, for their self- determination and therefore for their own decisions and standpoints. It also means to do no harm, to minimize the risks and maximize and share the benefits, and to ensure the research subjects’ safety and privacy. How these rather general terms can be and already have been translated in practice will be the topic this report.
This deliverable is organized in the following way: Chapter 2 forms a short introduction to the LILY project and the relevance of ethics in the project. In chapter 3 general ethical principles in research will be presented. In chapter 4 an overview of ethical issues emerging in various stages of a project and strategies to deal with these issues will be given. Chapter 5 contains short examples of case studies and project reports with a focus on the ethical guidelines which were developed by the authors. Chapter 6 presents questions to be posed in all stages of a user study in a checklist format and provides one sample confirmation document for informed consent that can be modified by partners for their use. The report concludes with a collection of policies and legal frameworks applicable in the countries where LILY research takes place.